[dropcap]O[/dropcap]TTAWA – A 14-year-old Jonathan Pitre, a day free of pain for him only exists in his dreams.
Jonathan Pitre was born with Eb (epidermolysis bullosa). This is a rare and painful genetic condition. There is no hope of cure from modern medicine.
You can imagine the condition where the skin layers are broken, the breaks are held together by some kind of glue inside the body. The skin is extremely fragile, where merely eating or drinking can cause blister inside the throat.
Jonathan says: The tough time I faced is when I went for the bath.
According to Jonathan’s mother, every other day Jonathan has to go through the same pain. As a mother, for Tina, it is the biggest challenge to face when her kid is screaming like this and they are both helpless with their pain.
Jonathan says: My strength comes from people around me, as they do believe in me.